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In 2004, Musette and Allen Morgan, Jr. made
a substantial gift to establish the Musette and Allen Morgan Jr.
Foundation for the Study of PSC. Their son, Worth, was diagnosed
with the rare liver disease Primary Sclerosing Cholangitis (PSC).
The Morgans were concerned that there was a lack of information
about PSC, a lack of research and no consistency in treatment. Often
the treatment for this fatal disease is a liver transplant. While
children are waiting for a liver transplant, they suffer with such
symptoms as severe abdominal pain, jaundice, weight loss and a profound
lack of energy.
With the aid of the Scientific Advisory Council,
organizations like Le Bonheur Children's Medical Center, funded research,
and support from individuals like you, the Morgans are fighting
PSC, a disabling and fatal disease that has affected their son Worth
and others like him.
To learn more about the Scientific Advisory Council,
click here.
To read Worth's story, click
here.
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